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Lowestoft Online > Community > Strictly Lowestoft > Debate Lowestoft Issues > Topic: Has anyone in our area had Lyme disease? petition being launched re treatment
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Author Topic: Has anyone in our area had Lyme disease? petition being launched re treatment  (Read 5096 times)
Denny23
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Posts: 33
Last weekend in Washington DC, patients in the US held a march and rally. Here it is on you tube.

http://www.youtube.com/user/DEVO12GA#p/

Just about to watch it myself now, and wish that this weird political strange situation did not exist. The science is openly available - the bacteria persist like chronic syphilis and each patient may have several different bugs as well as the Lyme, including viruses and rickettsias.

BW,
Denise
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Denny23
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Posts: 33
Just an update - there will soon be a link to the petition on the new website being launched by Lyme Disease Action

So far we have about 300 signatures on paper and over 550 online.

Unfortunately, patients are still having to find the treatment they need in the USA and Germany mostly.

Considering that this is a disease which could be causing sickness in half a million people in the Netherlands (and probably far more than that in Britain) it still amazes me that there are no specialist clinics being set up, nor special courses organised for doctors and medical students.
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Denny23
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Re: Has anyone in our area had Lyme disease? petition being launched re treatment « Reply #32 Posted: 10 December 2011 at 12:08 AM »
I'm really pleased to let you know that the charity Lyme Disease Action has put a short announcement on their web site with a link to the petition:

http://www.lymediseaseaction.org.uk/resources/latest-news/

It was a bit hard to find once it wasn't any longer in the latest few news items. Perhaps I'll ask if it can be more noticable again
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Denny23
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Re: Has anyone in our area had Lyme disease? petition being launched re treatment « Reply #33 Posted: 09 February 2012 at 09:46 PM »
Just catching up - here's a BBC news item that's important. Will be putting the 2 new scientific studies in following posts soon.

http://www.bbc.co.uk/insideout/west/series11/week6_lyme_disease.shtml
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Denny23
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Re: Has anyone in our area had Lyme disease? petition being launched re treatment « Reply #34 Posted: 13 February 2012 at 12:04 AM »
Persistence of the disease after treatment was recently proved in monkeys at the world's most famous primate research institute at  Tulane university.

This is exactly what's going on in humans, and it also shows up the way antibody tests didn't work

http://www.plosone.org/article/info%3Adoi%2F10.1371%2Fjournal.pone.0029914

Here is an explanation at www.lymedisease.org

http://lymedisease.org/news/lymepolicywonk/lymepolicywonk-new-study-shows-lyme-persists-in-monkeys.html
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